Subject: cancer, intellectual disability, policy, prevention, screening
Year: 2023
Type: Journal Article
Title: The importance of cancer prevention policies to inform and guide preventative and screening measures for people with intellectual disabilities: The COST project "Cancer- Understanding Prevention in Intellectual Disabilities"
Author: Vukovic, Vladimir
Author: Banda, Amina
Author: Carneiro, Lara
Author: Dogan, Soner
Author: Knapp, Peter
Author: McMahon, Martin
Author: Milutinovic, Dragana
Author: Soylar, Pinar
Author: Sykes, Kate
Author: Tosun, Betul
Author: Yava, Ayla
Author: Trajkovski, Vladimir
Author: Wells, John
Author: Cuypers, Maarten
Abstract: Cancer is a global public health problem, but its exact prevalence in people with intellectual disabilities is still uncertain. This population, with limited health skills and complex health needs, faces many challenges in cancer prevention, screening, timely diagnosis and treatment. Furthermore, they are often underrepresented in general cancer prevention and screening policies across Europe, leading to widened disparities in health outcomes and premature mortality. Thus, unified national and local policies are needed to reduce inequalities and promoting a pan-European inclusion of people with intellectual disabilities. Our goal is to raise public awareness of this issue, including the involvement of people with intellectual disabilities, and promote engagement from relevant stakeholders. The COST Action 'Cancer- Understanding Prevention in Intellectual Disabilities' (CUPID) project will address health inequalities faced by people with intellectual disabilities in relation to cancer, and support the development of policy recommendations specifically tailored to their unique cognitive and healthcare needs, having a positive long-term impact on quality of life.
Publisher: SAGE Publications
Relation: COST project “Cancer- Understanding Prevention in Intellectual Disabilities”
Identifier: oai:repository.ukim.mk:20.500.12188/28830
Identifier: Vukovic V, Banda A, Carneiro L, Dogan S, Knapp P, McMahon M, Milutinovic D, Soylar P, Sykes K, Tosun B, Yava A, Trajkovski V, Wells J, Cuypers M. The importance of cancer prevention policies to inform and guide preventative and screening measures for people with intellectual disabilities: The COST project “Cancer- Understanding Prevention in Intellectual Disabilities”. Journal of Intellectual Disabilities 2023, Vol. 0(0) 1–14. DOI: 10.1177/17446295231213752
Identifier: http://hdl.handle.net/20.500.12188/28830Identifier: 10.1177/17446295231213752
Identifier: http://journals.sagepub.com/doi/pdf/10.1177/17446295231213752Identifier: http://journals.sagepub.com/doi/full-xml/10.1177/17446295231213752Identifier: http://journals.sagepub.com/doi/pdf/10.1177/17446295231213752
